Baby Kate, Christmas 2011. |
Hey, and welcome. I'm really glad you've taken
the time to come and check out my blog :-)
I've been thinking about getting a blog
started for a while. They've always rather appealed to me as they
are, in a way, a kind of digital scrap-book...and, I'll admit it, I'm
a quite the scrap-geek. I have mountains of scrapbooks crammed in our
bookshelves at home; and I'm pretty sure the pile of scrapbooks for
each child is taller than each kid! I love taking photos and enjoy
making things look pretty (Kindy-glitz, anyone?), so scrap-booking is
perfect – I can preserve all our family's memories while indulging
my craft cravings!
However, while I can paper-punch and
emboss in my sleep, when it comes to the blog-front, it's taken a
while for me to press the 'Publish' button.
You see the thing, is, I'm actually a
professional communicator. I have, for the most part of my working
life, been paid to write.
Our baby man, Harrison, January 2012. |
Craft a carefully worded report which
says a lot but gives nothing away? Yup, I can do that.
Translate trisyllabic engineering speak
to make electricity poles and wires sound like sex on (concrete)
legs? Easy done.
Write a ten-minute speech for the GM on
a topic you know nothing about? From a half-sentence brief? Oh, and
he's going to present it at a big do tomorrow full of very important people? No problemo. This happened not all that long ago. On my first day back from maternity leave. Welcome back!
But, in writing a blog, it's time to
get personal. When you write a blog, you have to write about yourself
and feelings and stuff. Yikes!
Our big boy, Will, February 2012. |
Until a no-big-deal visit a fortnight
ago to the paediatric physiotherapist at the John Hunter Hospital in
Newcastle, NSW. And so the story begins. But first, some background.
Wheeee!!! Slippery-dip fun in January 2012. |
William, who is almost five, is a palaeontologist-in-training who is
intuitive, empathetic and has an incredible memory.
Harrison is
almost three and he's our charming, cheeky one. We always joke that
the girls will be beating down our door in about 10 years' time! He's
got some wicked dance-floor moves and is now the proud owner of some
really cool Scooby Doo big-boy pants.
Kate. Wearing a bucket on her head. Of course. |
Katelyn is the baby of our
family at almost eighteen-months of age. Our “Kitty Kat” is a
sweet, fine-boned little girl who said her first word at eight months
(hello), loves singing and likes wearing her Daddy's underpants
(thankfully, only the clean ones) on her head. And, we know now, that
she also has a dislocated left hip, and it has probably been that way
since she was born.
Despite being the youngest of three
children who are all close in age, Katelyn, though incredibly strong
and flexible, has always been a bit behind when it comes to
mobility. She only really started crawling properly once she was 13
months old and, at 17 months, she still isn't walking. She does all
the normal stuff, like cruising around the furniture and standing up,
but when she pushes her baby doll in her pram, we noticed that she would
drag her left leg behind her. We weren't worried, just concerned,
but, just to be on the safe side, we booked her in to see a
paediatric physiotherapist at Newcastle's John Hunter Hospital in
mid-February.
Grant and I. |
I was expecting just to be told that I
was overreacting and to be sent home with some exercises. Instead,
the physiotherapist took one look at Katelyn, called in an
orthopaedic specialist and quietly worked through a series of
questions about Kate's hips. Where was she born? Did she have any
issues with her hips at birth? Had we had Kate's hips checked since
since was born? Of COURSE we've had her checked! I am OBSESSIVE about
getting the kids' health checks done....at the very least because I like
recording their stats as they grow in their scrapbooks.
The
specialists murmured some reassuring words, patted my arm and bundled
us off for x-ray.
I cuddled Katelyn close to me, took a deep, shaky
breath and telephoned Grant in tears.
Later that morning, I stood behind the
protective screen while Grant held Katelyn still for her x-ray.
Watching the radiographer capture the image, I didn't need to be an
expert to see that something was wrong. Her hip is dislocated, the
orthopaedic specialist said, and you'll need to meet the Hospital's
Surgeon tomorrow. We went home, shell-shocked and hardly slept a
wink.
We met Dr. Eric Ho, the Surgeon, the
next day. A very smart man, who's managed over 40,000 patients, Dr.
Ho is regarded in professional and academic circles as quite the hip
guru. We had both Harry and Kate with us and he arranged for his
nurse to come and take them away for a play before he shut the door.
Gulp.
The
problem with Kate is that she has been diagnosed quite late. DDH is
usually picked up at birth, or soon after, and the treatment for
those very young babies is quite different. It's not near as
invasive. Katelyn will need an 'open reduction' surgery, where the
hip joint will be moved into the correct position while she is under
a general anaesthetic. Dr. Ho will make the hip joint more stable by
doing some correction work on the surrounding tendons. And, again,
because of her late diagnosis, it's also likely that he will also
need to perform an osteotomy on the thigh or pelvic bones to make
sure the hip joint stays in place. For want of a better term, this is
pretty much a hip reconstruction.
I
tried to stay detached and focus on the facts and I think I was okay
until I asked Dr. Ho how long the operation would take. When he told
me it would take about four hours, I lost it.
Grant wiped his own tears away and held me to
his chest.
Dr. Ho passed the box of tissues.
“It's okay,” Dr. Ho said, in his funny, matter-of-fact way. “Everyone who comes in here, they
sit in that chair, they cry. That's why we take your children away,
because you will cry. If it were me, I would cry too.”
The
rest of the appointment passed in a blur.
Lots of anger, questions
and frustration.
Incredulity. This could have been missed had it not
been for our vigilance and persistence.
Talk of a family meeting at
the Hospital to work through how Katelyn's condition will be managed
over the next year and, as Dr. Ho put it, “the long surgical
journey ahead”.
Finally, a request from Dr. Ho to go home, read up,
rest up and talk about whether we'd like to go ahead with the
surgery.
As if there's any question. Katelyn is our beautiful
daughter and we will do whatever it takes to make her better.
I only
wish I could take this on for her so she could be spared what lies
ahead.
You have a beautiful family. I am glad you are taking the time to blog. We often return to Aleena's blog to watch her videos and remember the stories. I am sorry to hear your daughter has to go through this.
ReplyDeleteI've just stumbled upon your blog. We've had our own DDH journey with all 3 kids. Just pavlik harness for two of them, but late diagnosis with our middle girl. For her, we've had the idea of surgery looming over our heads for quite some time. We saw Dr Ho too - sounds like his bedside manner has improved with you! We ended up getting a 2nd opinion in Sydney and thankfully after a lot of monitoring, her improvement has meant that surgery is off the table for now (& hopefully for good). I really hope that things work out for your daughter. If you're interesting in our experiences, look up "hips" on my topics section in my blog :-)
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